A Liquorice Allsort Life

                                                                                  

In this open account, Grant speaks about what led him to advocacy services and why he deserves to live with a voice of expression.

A liquorice allsort life

An uneducated man.

In my later years I struggle to make what little sense I can, of a past life which once crucified me with rejection, isolation and addiction.

No longer is there a necessity to constantly regurgitate those years of negativity or immerse myself in the pain. I have slowly learned to embrace only love, compassion and positivity.

I reject all else.

This says I deserve to exist with a voice of expression. So hear me now.

In my own mind I hold a distorted and false picture of my birth, set within the deep confines of a decaying urine soaked service room of a south London hospital, on a hot and early summer morning way back in 1961.

Unworldly music seeps from the peeling paintwork; Carl Orffs 1936 cantata of Carmina Burana’s ‘O’Fontuna’. The rage of angels singing and crying.

The feeling of deep rooted worthlessness I have carried like an anvil into my adulthood is reflected in my thoughts that perhaps I should have been left to plummet down the cracked porcelain bowl, into the conduits of the sewer, towards an eternal holiday along the shore of the south coast. Maybe these lines indicate why I have sought my own obliteration for so long.

It would be impossible for me to write a time lined journal of my life, like Tolstoy’s ‘War and Peace’. It would be too long and far too painful.

The reality of my earlier days begins with me, aged seven years old, standing wet and freezing cold, as I seek shelter inside an old phone box on a dark winter morning. I am waiting for my light blue I.L.E.A bus to take me to my ‘special’ school. As I step onto the bus, ‘normal’ kids from other schools shout abuse and throw stones.

I do not react and I do not cry.

Already I understand which battles to fight and which ones to throw away.

Every child at my school had a disability. I loved that school and the people in it. This was my sanctuary and respite from trauma, pain and violence.

I don’t remember a time when my family lived as a whole unit. I only remember me and my very unwell mother, disintegration and then a void of time which was filled by being in other peoples care.

Some places I experienced real warmth and blissful happiness.

In most, all I found was an endless horizon of pitch black darkness which I do not want to return to.

Memories and nostalgia are bleak; an ill and unfit mother with all the violence of a ‘chinese burn’ upon my wrist, as my small frame is dragged along, then beaten with a splintering stick with all the force of Thors hammer. The rage of an overweight steam train out of control.

I know when morning comes; I will awake with blood soaked sheets mingling with urine, stuck to the fine lacerations on my back and legs.

A liquorice allsort of a life: suicide attempts, drug and alcohol addiction, mental illness, bankruptcy and homelessness combined with a rejection and denial of myself and others; an overwhelming inability to form long term relationships, always on the outside looking in rather than being a part of; a Jesus syndrome of self crucifixion along with self doubt and the all encompassing paranoia which has the ability to destroy everything; an exploding set of events gathering deafening reverberation across time, has contained many of the things that one might associate with the fragments of a childhood which was lost.

However, be left in no doubt … life also leaves me with an inner strength like that of the very finest Japanese steel. Proud of my independence and self reliance, I am mindful with positivity, driven with the velocity of a speeding bullet.

Over time I have attentively listened, arriving at an understanding of who I am and finding an acceptance in all things. I have a responsibility for myself and my own actions. Yes I am the consequence of an others actions but I proportion no blame. Ultimately I loved my mum regardless of anything because I believe love and compassion are unconditional.

It has taken that child well over fifty years to find a level of peace because what I didn’t understand as a child left me with fear.

I no longer search for answers, as I am no longer that child.

If you read in between the lines you will know my story.

I am not unique.

I am blessed.

I am humbled,

And I am thankful.

I have survived all.

I end this story as I began …I am an uneducated man; this is the only way I know how to write.

This says I deserve to exist with a voice of expression … so hear me now.

An Instant Voice – Grant tells it his way

Recently I have been working with a former client to support him in putting together a story based on his experience receiving advocacy support.

Grant wrote what is important to him and what he wants others to understand.

An Instant Voice

Over the years of my adult life I have been both fortunate and unfortunate enough to have experienced a view of services from within a professional perspective, crossing the void to status of ‘client’. What lead to this status was a liquorice allsort of a life: suicide attempts, drug and alcohol addiction, mental illness, bankruptcy and homelessness combined with a rejection and denial of myself and others; an overwhelming inability to form long term relationships, always on the outside looking in rather than being a part of. My life contained many of the things that one might associate with the fragments of a childhood which was lost. This eventually lead to me being institutionalised.

Like many others before me, as I experienced my first taste of institutionalisation, I realised my voice was the first casualty.

To lose the ability of expression is to deny dreams and expectation, removing all esteem. The denial of expression has the most profound effect on an individuals’ well being, which in turn like a pebble across a pond, reverberates at great cost to many services.

It is vitally important that every person, regardless of background, has access to advocacy services. Advocacy can alleviate unnecessary stress and can be a positive and preventative measure for a persons wellbeing.

During periods of distress and difficulty; receiving advocacy was like having an anvil lifted from my back; the immense weight of struggling to carry any possible injustice or need, being far too big a burden, even for the strongest of human beings.

Many times I have witnessed the stealth like suppression and removal of my friends’ wishes and ideas. Ultimately and sadly this has ended in suicide too many times.

The kindest gesture is to always hand the power over to the client; true empowerment is life giving and uplifting.

A good advocate is somebody to hold dear. That instant voice we all wish to find.

How wonderful it is to be listened to.

Lights! Camera! Action!

I am really happy to post the link to SEAPs new promotional film, shot during the ‘Advocacy Corner’ sessions at our recent regional away days in Bristol and London.

The film is very powerful, illustrating the commitment and passion of people working in SEAP. It also highlights how powerful client stories are.

Marie Casey CEO, showed the film at a Health Complaints Conference to demonstrate the work SEAP does. 

SEAP are planning to have an additional final page directing people who want to support their campaign ‘…to have an advocate for all…’ to a supporters/fundraising page on their new website, due for launch very soon. Watch this space!

I hope this encourages and inspires you to tell and share your story.

The film is 4 mins 52 secs and you can view it here http://vimeo.com/102218539

We walked

A massive thank you to my colleague Graeme from our SEAP team, for getting me up that second hill !!

http://www.seap.org.uk

HARC Charity Hastings Home Visits HARC Advice Representation. HARC...

Invictus Games

A warm welcome to new staff member Dan, our Military Project Advocate in Oxford and Bucks. These are his thoughts this week …

“Having taken over the Military Advocacy Project here at SEAP I would like to draw your attention the Invictus Games 10-14 Sept

To give you an idea of what it is all about, more than 400 wounded Service personnel from 12 countries will compete in 9 adaptive sports – athletics, archery, wheelchair basketball, road cycling, indoor rowing, wheelchair rugby, swimming, sitting volleyball and a driving challenge.

This is the first ever Invictus games and is championed by Prince Harry. It is taking place at Elizabeth Olympic Park in London.

‘The word ‘Invictus’ means ‘unconquered’. It embodies the fighting spirit of the wounded and injured Service personnel and Veterans, and what these tenacious men and women can achieve post injury. The Invictus Games will celebrate this through sporting achievement that recognises the sacrifice they, and others, have made’

Coverage is on the BBC between now and Sunday but you can catch it on Iplayer if you are busy. The ‘Meet the Warriors’ and the Opening ceremony give a great insight into not only the physical but the mental challenge’s these young men and women face.

If anyone were to question the need for, or the legitimacy of Projects such as ours they need only catch a glimpse of the games to be realise they are indeed wrong to do so.

Those competing in the games represent just a tiny snapshot of the thousands suffering as a result of serving their country. As the Project grows we hope to reach out to and support as many we can.”

http://identitydesigned.com/invictus-games/

Walk this way

In the news

Me and two other SEAP staff have got together to create a small team to take part in the 10 km fundraising walk on Mon Sept 15th @ 5pm, to support local services.

The walk is to raise funds for legal aid services.

The main beneficiaries of the walk are Hastings Advice & Representation Centre (HARC), Hastings Citizens Advice Bureau and the Hastings service of Brighton Housing Trust.

The Hastings Legal Walk starts and ends at the First In Last Out (FILO) pub on Hastings high street, Old Town. Local lawyers, judges and the advice agencies that work in the area all join for a fun 10km route.

In 2013 a brilliant time was had with 81 people joining in from 15 teams raising over £2,000! 

London Legal Support Trust

The London Legal Support Trust is an independent charity that raises funds for free legal advice services in London and the South East, supporting the provision of specialist legal advice through law centres, advice agencies and citizens advice bureaux by providing them with grant funding alongside other forms of support. They raise funds from fundraising events, including the London Legal Walk and also receive ad hoc donations from law firms and chambers. 

In addition to funding they offer their knowledge, contacts and experience of the sector to help agencies become more sustainable (http://londonlegalsupporttrust.org.uk/).

S’pose I ought to get out of these flip flops and find me some ‘proper’ 10km footwear!

Against all Odds

Congratulations to SEAP Volunteer, Jo Batkin, for achieving the first ever award “Against All Odds” Volunteering Award, from Hastings Voluntary Action (HVA) in recognition of her work and dedication. 

Jo was nominated by SEAP for this award which will be presented annually to a volunteer who has overcome their own challenges in order to support others. 

In its first year, there were 6 finalists who were asked to attend HVAs AGM on 28 January to receive a certificate.   Out of those 6 finalists, members of HVA voted on an overall winner to receive a special award. 

We are so pleased and proud to announce that Jo won this award and received her trophy (a beautiful specially commissioned unique piece designed and made by students at the Sussex Coast College);  This was a unanimous decision by the voters at HVA as they were overwhelmed by the support Jo has given over many years of dedicated hard work in times of her own needs.

This award was given in the memory of Fran McEwan who passionately supported voluntary action.  I am certain that Fran would have wholeheartedly approved of the winner of this award.  Jo has given her time freely to support SEAP’s work and our clients.  She is an important part of the team and is appreciated by us all. 

Well done Jo and thanks again for your hard work (www.seap.org.uk)