Thank you

A client explains what advocacy support did for her.

Thanks to the work SEAP did acting on my behalf with the medical profession, from emails to telephone calls, there is now a Patient Pathway set up for East Sussex hospitals regarding Adolescent Mental Health. Without the knowledge of your organisation I would not have known where to start.

There were times when I was so exhausted trying to deal with my step sons mental illness that I felt I didn’t have the energy to continue the fight. But Pamela would email me with some small bit of news or ring me and it would give me the strength to carry on.

I cannot thank you enough for the support and amount of hard work you have put in to help me. I would not have been able to achieve the result without your help. The Patient Pathway was set up because of my persistence but you must also take the credit as without you I would not have known where to start.

Thank you for your patience and understanding. You gave me the confidence to fight for what I believed was truly necessary in the Mental Health Service. 

What is Advocacy? film – link is here

SEAP ADVOCACY UK

Following an earlier update on SEAP’s Annual review, here’s a link to a film explaining ‘What is Advocacy?’, from all perspectives. The client’s ‘voice’ tells a powerful story.

 

http://vimeo.com/102218539 from The Lens Box

“The organisation SEAP asked us to make a film to help people better understand their advocacy service, and how it may be able to help people. SEAP provide independent advocacy services to help resolve issues or concerns you may have about your health and well-being, or your health and social care services.

SEAP Advocacy is able to support the most vulnerable people in society, including those that do not have the capacity to instruct SEAP and people from marginalised communities who struggle to have their views and wishes listened to and heard.”

Annual Review 2014

SEAP’s annual review on their advocacy services is now available to read/download here http://www.seap.org.uk/

 

Alison

Aaron is my daughters partner and he is taking on his 2nd fundraising boxing challenge (White Collar Boxing) for Cancer Research, this Christmas.

When our lovely Aaron took up the challenge again this year, to show cancer who is the boss, little did we know how poignant this would become.

This week my sister Alison has been diagnosed with terminal cancer.  It is in her brain, kidneys, liver, spleen, lungs, stomach and Pancreas.

Needless to say she has a very short time (weeks) left with us all.

We are devastated.

Alison is petrified.

What I want to know is, why are melanoma skin cancer patients not given body scans as routine, once the melanoma had been removed and patients are considered to be in remission, as happened to Alison 4 yrs ago?

Surely a contribution of monies raised can be given to fund body scanning, alongside funding vital research.

It is not good enough that now Dr’s say there was perhaps just one cell that got away, causing this secondary cancer.

I intend to campaign for this to become standard practice, and I want to hear from you if this has been yours or a loved ones experience.

I want Cancer Research, Macmillan, NHS Trusts and anyone else to talk to me and explain why funds are not given to the screening of the human internal system.

I want an open dialogue to engage with people on levels where understanding, awareness and vital equipment are all in the realms of possibility. Can you help me?

Please support Aaron and anyone else you know who are taking part in fundraising challenges to show cancer who is boss.

Please share this again and again. Let us get our voices heard about this and begin to make an impact. Skin cancer is killing far too many people.

You can support Aaron here:

https://www.justgiving.com/Aaron-Meek1/

Please email me, Sarah-Jane @ madame-butterfly@live.co.uk or post your comments, thoughts, experiences on here.